Thursday, August 22, 2013
Wednesday, March 06, 2013
JOSI BROKE A FEW TEETH & THE NERVES ARE EXPOSD & SHE'S IN PAIN BUT CAN'T AFFORD A DENTIST! BE A HERO & ADOPT JOSI
[JOSI]
have a few teeth i broke grinding them Stan..the nerves are exposed. very painful
[STAN]
Are u going to the dentist?
[JOSI]
well can't really afford to but going to write to a few and beg them to take payments
HERE'S A FEW OF THE COMMENTS OF SUPPORT OUR ANGELS GAVE JOSI:
- Debbie Hartzell Ramsey (((((Josi))))) I broke two teeth when I was on Novantrone and still have yet to get them fixed. Thinking of you
- Lianne Gildehaus ((hugs)) i ground my teeth as a kid and was given a retainer type mouth guard to protect my teeth, tht worked for awhile till i ground right through it lol. hope someone will accept payments
- Sandy Allard White OMG I am a BAD grinder. I've done that so many time.....Orajel....carry it with you, it works wonders
- Kee-Yana Thomas Hope you find a dentist that will help...I've been a terrible grinder my whole life. Like Lianne I was given a retainer but they are very uncomfortable. I went to Walgreens and found these little guards that slides right in and covers the back teeth, GREAT. When I'm all out I sleep with a piece of gum in my mouth so I can grind the gum...weird lol but works for me and my husband poor little ears...
- Patti Seaman Some of the meds you are taking could cause the grinding in addition to dry mouth which also cause the teeth to crack. If you go to the MS web sight in your area they usually can recommend dentists who will work with you on a sliding scale . Teeth ar...See More
- Nicole Corbett Jones I was lucky and my Grandma paid for my top dentures but had a lot of problems through the years with bottom teeth and I do grind mine off and on. I am on medicare and medicaid and got a tooth pulled last fall I think it was and I only had to pay 2 buck...See More
- Stephanie Redden I hope you find a dentiist that can help. I used to grind my teeth real bad but then I divorced my problem and I quit. I think you can get a mouth guard thing at Walmart. (((((HUGS))))) ((((( )))))
- Mary Tunstall My dearest Josi I reccomend going to the emergency room NOW!!! In November this happened to me and another MS patient at the same time. I live in California and have medical which has emergency dental only so i went she said yes its abcessed here are s...See More
Tuesday, March 05, 2013
SANDY'S INSURANCE WONT PAY THE $136 PER MONTH ADMINISTRATIVE COPAY ON HER TYSABRI INFUSIONS! SO SHE IS TAKING A MEDICINE THAT DOESN'T WORK AS WELL! BE A HERO & ADOPT SANDY
[SANDY]
Been a little rough since the holidays Stan. I'm hanging in there. Changing to abaugio pill from Tysabri. Hubby has been in hospital 3 times and goes back in Fridqay. Keep us in your prayers. Hope you are all ok.
[STAN]
Sorry about your husband. I will post a prayer. Anything serious? Why are u changing from tysabri?
[SANDY]
He has had several heart operations ,colon too. Then they found an aortic anyurism and repaired that. He has 9 stints now. The vein from the aorta has caused a hernia. It has to be fixed before it strangles. He also has some leakage in his mitral and aortic values.
I am switching because my dr thinks this will help my balance more. Also the administrative copay was something our budget couldn't bear with all the other bills.
[STAN]
how much was the administrative coo pay each month?
[SANDY]
It was 136.00, with our other meds and hospital payments combined, it was just becoming impossible unless we want to go thru all our savings. Thought we would have a great retirement and still be working, but tha't the way it goes. We also have a couple of pets that require some real expensive meds. If we knew what was coming we could have done more, but I know God has his reasons.
Hope you are doing well Stan !!
BE A HERO & ADOPT NICOLE BECAUSE SHE NEEDS FAMILY COUNSELING & CANT AFFORD IT:
Stan,
So I had a relapse over the last week they put me on oral steroids because its an old flar up no new lesion which is good right?
But somehow I now have a family feud started and I was working for my brother but he won't let me come back for another four days. I can't not go without work even a couple a day would help.
Sitting in my house dpi.g nothin not tryin to get back into my routine isn't gonna help things. Is that so wrong , I'm tired of people telling me what I should do instead of asking me what I think I can handle or what I think is best.
Well, I can say one thing stressing about money isn't going to help and now that's where at. I don't know what to do. I don't even know how it got to this point. There was a famil get together on Saturday I didn't go because noise really bothers me right now and I wa to rest so I could go back to work on Monday. So somehow things got said on both end between me, my brother and my mom. They say they just want what's best for me and I know that its true but why do they have to tell me what I need to be doing.
I'm 30 and they treat me like I'm 10 and disabled. I'm not disabled and this disease is going to kill me. But I can't live my life as if this disease is the only thing in my life.
I have a husband and 2 lil ones to take care of. I take care of myself I know when to call quits I may push myself sometimes but isn't that what ur suppose to do. Not sit around let it take over ur life. Am I wrong for telling them how I feel?
They've never even asked how I'm doing emotionally.
Oh I just don't know what to do. So tired of crying. Any advice?
Should I apologize and try to take it all back and try to get things back to the way it use be? Which probably won't be the same. Was I wrong to speak my mind.
My mom told me to stop being a martyr. What the hell. All I said was that I wasn't going live my life on the couch not doing things with my kids like she did. I know she did the she could with what she had going on but isn't that what she should want for me to not want to let life pass me by because of some evil disease.
Idk what to do with my mom. I'm sure we will work it out but during the time I was supp to be resting I was stressed to all hell. So I have to take more time off because I didn't g that rest I needed. I know they only want the best for me.
But I need them to start listeni to ME and my reasonings for doing things instead of making choices for me and treatin me like a child. My mom has fibromyagia, so I thought we had a similiar understanding we feel but I've come to realize she has no idea. She knows nothing of this disease and she tries to understand it better I can't talk to her about it anymore. Is that so wrong of to feel that way?
So I had a relapse over the last week they put me on oral steroids because its an old flar up no new lesion which is good right?
But somehow I now have a family feud started and I was working for my brother but he won't let me come back for another four days. I can't not go without work even a couple a day would help.
Sitting in my house dpi.g nothin not tryin to get back into my routine isn't gonna help things. Is that so wrong , I'm tired of people telling me what I should do instead of asking me what I think I can handle or what I think is best.
Well, I can say one thing stressing about money isn't going to help and now that's where at. I don't know what to do. I don't even know how it got to this point. There was a famil get together on Saturday I didn't go because noise really bothers me right now and I wa to rest so I could go back to work on Monday. So somehow things got said on both end between me, my brother and my mom. They say they just want what's best for me and I know that its true but why do they have to tell me what I need to be doing.
I'm 30 and they treat me like I'm 10 and disabled. I'm not disabled and this disease is going to kill me. But I can't live my life as if this disease is the only thing in my life.
I have a husband and 2 lil ones to take care of. I take care of myself I know when to call quits I may push myself sometimes but isn't that what ur suppose to do. Not sit around let it take over ur life. Am I wrong for telling them how I feel?
They've never even asked how I'm doing emotionally.
Oh I just don't know what to do. So tired of crying. Any advice?
Should I apologize and try to take it all back and try to get things back to the way it use be? Which probably won't be the same. Was I wrong to speak my mind.
My mom told me to stop being a martyr. What the hell. All I said was that I wasn't going live my life on the couch not doing things with my kids like she did. I know she did the she could with what she had going on but isn't that what she should want for me to not want to let life pass me by because of some evil disease.
Idk what to do with my mom. I'm sure we will work it out but during the time I was supp to be resting I was stressed to all hell. So I have to take more time off because I didn't g that rest I needed. I know they only want the best for me.
But I need them to start listeni to ME and my reasonings for doing things instead of making choices for me and treatin me like a child. My mom has fibromyagia, so I thought we had a similiar understanding we feel but I've come to realize she has no idea. She knows nothing of this disease and she tries to understand it better I can't talk to her about it anymore. Is that so wrong of to feel that way?
Monday, March 04, 2013
"i feel hopeless & helpless & ashamed of myself-ive done everything to lose weight & cant-my neuro suggested gastric bypass"
hello stan,
i am updating you on my meds, i have decided to go back on copaxone, everyone keeps
chewing my butt and i said ok ok ok,
i will go back on a MS shot, so thats that. but stan, i have an issue,
i went to my PCP a couple of weeks ago, then to my neuro today, both of them fussed at big time and told me i weigh too much, i have been a big girl all my life, and i know that not physically good for me, but i have done everything to lose weight and i just cant.
my neuro today even suggested gastric bypass surgery. when i got home i just cried
never saw myself as that fat,
there i said it, no other word for it, i'm fat.
they want me to completely change my diet, which is going to be hard being as that i ca afford most of what they want me to consume, they want me to walk a mile every day, which i am gonna try to do, i also have to go to a sleep study, he says he thinks i have s apnea, so i go in sept to do that.
my depression meds quit working and i am in the process of weaning off one and gettin on another, i hope it all works out.
i just feel hopeless and i guess in a way helpless.
i am going to try one more time to lose the weight on my own, if i cant, i guess i will look into the gastric bypass, funny ho cant get one dr to give me the hystorectomy i need but they are willing to cut me open reduce my appetite, he refered to it as something about what obama wants every dr to their patients to do.
it scares me, i just feel like crawling in a hole and hiding, until today, i have not felt ashamed of myself, but i do now. i dont know, i just feel like no matter what i do its wrong
it seems that i would have lost weight with as much ass chewing as i have been getting here lately from people
i will go back on a MS shot, so thats that. but stan, i have an issue,
i went to my PCP a couple of weeks ago, then to my neuro today, both of them fussed at big time and told me i weigh too much, i have been a big girl all my life, and i know that not physically good for me, but i have done everything to lose weight and i just cant.
my neuro today even suggested gastric bypass surgery. when i got home i just cried
never saw myself as that fat,
there i said it, no other word for it, i'm fat.
they want me to completely change my diet, which is going to be hard being as that i ca afford most of what they want me to consume, they want me to walk a mile every day, which i am gonna try to do, i also have to go to a sleep study, he says he thinks i have s apnea, so i go in sept to do that.
my depression meds quit working and i am in the process of weaning off one and gettin on another, i hope it all works out.
i just feel hopeless and i guess in a way helpless.
i am going to try one more time to lose the weight on my own, if i cant, i guess i will look into the gastric bypass, funny ho cant get one dr to give me the hystorectomy i need but they are willing to cut me open reduce my appetite, he refered to it as something about what obama wants every dr to their patients to do.
it scares me, i just feel like crawling in a hole and hiding, until today, i have not felt ashamed of myself, but i do now. i dont know, i just feel like no matter what i do its wrong
it seems that i would have lost weight with as much ass chewing as i have been getting here lately from people
"I lost my arms my job and my house"
Here'e my story Stan,
When i was 21 .I went blind in my left eye .I was told I had MS.. and I was ok for 2 years
after that.. then the meds stop working {Rebif} and my body started to die off slowly..I l
my arms my job and my house. I was going into treatment once a month to get my body
back working.Then things started to look up and back moving on a better path. I ve wor
super hard to get healthy heart er.Yoga, art, Healthy food meditation and great people
around me and a change of mind set have helped me through this.
Im now on{Tysabri} praying everyday it keeps helping me. Its been a blessing in so man
ways.. It may of got me physically but emotionally and spirally Im stronger.. I love ..life..
sooo much more and charish the moments.
It just shows u, u never know when something is going to change ur life completely... b
for the Better...
Saturday, March 02, 2013
ALLY WANTS HER KIDS BACK! Be a Hero: Adopt Ally
Ok Stan, when I was pregnant with my daughter...He was deadbeat..wouldnt work...didnt care about me or his unborn baby..I worked with my ex's mom at the time...One day she came up to me and said I better not leave her son,or she will have my child when it is born..I did not know this women,nor did she know me.......
My daughter was born on Oct 28 1997...At the time I lived with my mom,and her very abusive boyfriend..He is a drunk..and would verbally abuse my mom and myself,and all of us kids! When my daughter was just 3 days old,she would cry from 4 pm to about 8 am..I found out that she had severe acid reflex,and her dr put her on some acid meds,and I had to do various things with her diet,and how she would sleep....She did this for about 8 months...So long story short,I was working full time,going to high school,and taking care of my daughter..who still would keep my up literally all NIGHT! I had not sleep! was very stressed...along with him not wanting to work,and help out with bills...I attempted to leave him for good...That made his mom very upset..so I backed down and stayed with him,for 13 years...
My daughter was born on Oct 28 1997...At the time I lived with my mom,and her very abusive boyfriend..He is a drunk..and would verbally abuse my mom and myself,and all of us kids! When my daughter was just 3 days old,she would cry from 4 pm to about 8 am..I found out that she had severe acid reflex,and her dr put her on some acid meds,and I had to do various things with her diet,and how she would sleep....She did this for about 8 months...So long story short,I was working full time,going to high school,and taking care of my daughter..who still would keep my up literally all NIGHT! I had not sleep! was very stressed...along with him not wanting to work,and help out with bills...I attempted to leave him for good...That made his mom very upset..so I backed down and stayed with him,for 13 years...
In 2006 I was starting to have symptoms that was scaring me,all alone..with 2 kids..even tho he was there,He was not there..You know what I mean??!! I diagnosed with Multiple Sclerosis in 2007...I was not longer able to work,because of Cognitive Dysfunction! That means I was stuck at home,and also trying to run my house! All alone! So basically I had 3 kids..2 my own and one my husband! He did nothing to help me,with shopping,paying bills,taking care of the kids! In 2008 I became very spiritual..and woke my eyes up! I could not put up with this abuse! Even though I would have to fight for my kids,and fight with my ex and his family..but I felt strong enough to make this jump,and I knew this was better for the kid's,and myself well being I had to do this! He was accusing me of sleeping with a friend of mine..Which never happened!...So I left him...one night in March of 2008,I packed some cloths,and the kids some cloths.They were staying at a friends house for the night....I was walking out the door,then my ex grabbed me,with a gun in his hand! Would not let me go..he was holding me forcefully for 3 hours! Knocked me down,took my phone,and car keys! I was stuck..Finally after 3 hours I did get away from him....I headed down to my friends house,to pick up the kids,and following me was my exes mom! She started yelling at me,and was telling my kids to get in her truck..which they did! they drove off,and that was the last time I seen my kids for 2 weeks..My uncle loaned me $2,000 to hire lawyer..I did that...and I finally got to see my kids again,because the judge set up my ex got the kids during the week,and I got them on the weekends...In the mean time..I was getting harassing phone calls from my ex,his mom,and Aunt! Every time We would exchange the kids at the police station it would be a fight! I had an anxiety problem from this! After putting up with this for the summer 2008,I had to make a very hard choice...Do I put up with this,or do I take off without the kids! I fought with this for a few months...mean time My ms is flaring extremely horribly! my cognition got worse..I could not thing right...and the judge seen this..My ex was saying that I had always been this way! Which was a lie....So in the fall of 2008 I had made the choice to just stop the fighting for my kids well being,and just step back,let him cool down,and I would go back into their lives....I admitted myself to the phys ward at the Joplin Hospital..for 2 weeks,and then moved to Northern ILL with my father...I could not take the abuse any longer.. I have since been diagnosed with PTSD,stemming from the mental,and physical abuse I had endured for the past 13 years...Now he wont let me talk to them...see them....and the letters I send to the kids,he just throws away..So no contact with the kids at all...this past Christmas..My son was at my mothers house... and she let him skype me..we skyped for 3 hours.. he said they are treating them badly! My daughter is never home,I am worried about my kids! I need help to rescue them from his abuse!
Ok stan I tried to keep it short..but didnt happen that way...I hope this helps.. I need to get atleast my son back..he is 10 years old,and cant read,write,tell time,he is at a 1 grade level! I miss them so bad stan....Did i get to tell you my ms has switched to SPMS!
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